My worst neurological symptoms had take a bit of a hiatus for several weeks. They have now returned in force, probably because I pushed myself during the two moves. I had three falls last week. One in the shower, one shortly after a different shower and one on the concrete steps leading to my building’s front door (with a very full and somewhat heavy backpack). No serious injury beyond a pulled muscle that was fine the next day.
It made me realize I’d gotten complacent about my care, that Wilson’s disease is progressive and that it will not go away or get better without treatment. I let a string of good days convince me that this wasn’t serious, that it was okay being on a waiting list neurological (and possibly needing hepatological) treatment was okay, especially when medical practices and hospitals were inundated with covid cases. It’s time that I get back to demanding the evaluations and care that I need but I still feel uncomfortable demanding things, which I have got to get over.